Invisible? but you can see and hear me! Artwork

Living with Long covid

This podcast aims to raise awareness of long covid, provide a platform of support, education and the lived experience.My name is Julie, I am a registered nurse in the UK. I became unwell with Covid in May 2020 while working on the front line, during the first wave of the pandemic. Subsequently I live with long covid and POTS ( postural orthostatic tachycardia syndrome). I would like to share my journey and lived experience, the symptoms and how each impacts daily life. I aim to not only consider the physical issues but also the impact this has had mentally and emotionally. It is reported over 2 million people in the UK and an estimated 65 million worldwide, live with long covid. This is huge, and affects every area of a persons life, their family, friendships and work life. Join me and some great guests and let’s Learn, advocate and continue this journey together.

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Living with Long covid

Invisible? but you can see and hear me!

January 28, 2024 • Season 1 • Episode 86

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On this episode of the podcast I discuss invisible disability, and how a Ted talk I recently had sent to my inbox, had such an impact on me. I watched the Ted talk and could relate to Dr Amrita Sen Mutherjee experience of living with her own invisible disability. I resonated with her experience of having her condition diagnosed, and the subsequent impact to her life, family life and career.
UK Parliament estimate 70 to 80% of disability is invisible, which made me consider why invisibility is still fuelled with stigma, judgement and disregard, this appears to be historic and although experienced by people with Long Covid, would appear to effect many people living with invisible disability.
I don't have the answer to the "why" however I do feel we can collectively, the advocacy groups, charities and individual advocates can continue to raise awareness, educate and make the invisible, visible. The aim of this podcast is to open conversation about invisible disability, its short but relevant #onedayatatime

Links:
Dr Amrita Sen Mukherjee - Ted talk: Invisible disability; challenging bias to enable change
https://youtu.be/Ro3SbU95qwc?si=Diw-6RbqQXiuezCt

Equality Act 2010
https://www.gov.uk/guidance/equality-act-2010-guidance

My Links:
Long Covid clinic -Dr Binita Kane & Julie Taylor; Email: info@thelongcovidclinic.co.uk for more information

Episode sponsor; Turnto - This is a brilliant app, a one stop shop to support anyone living with, caring for or supporting and additionally professionals working with people living with Long Covid and or MECFS - please mention The Long Covid podcast n the "how did you hear about us" section, thank you
https://turnto.ai/download?utm_source=link&utm_medium=share&utm_campaign=livinglongcovidpodcast

Linktree:
https://linktr.ee/joulest
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Facebook page:
https://www.facebook.com/livingwithlongcovid/
Instagram:
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Planners:
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Return to work planner:
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Well being planner:
https://amzn.eu/d/a1Safxc