Living with Long covid
This podcast aims to raise awareness of long covid, provide a platform of support, education and the lived experience.My name is Julie, I am a registered nurse in the UK. I became unwell with Covid in May 2020 while working on the front line, during the first wave of the pandemic. Subsequently I live with long covid and POTS ( postural orthostatic tachycardia syndrome). I would like to share my journey and lived experience, the symptoms and how each impacts daily life. I aim to not only consider the physical issues but also the impact this has had mentally and emotionally. It is reported over 2 million people in the UK and an estimated 65 million worldwide, live with long covid. This is huge, and affects every area of a persons life, their family, friendships and work life. Join me and some great guests and let’s Learn, advocate and continue this journey together.
Living with Long covid
Guest Respiratory Consultant Dr Asad Khan talks about Long Covid, treatments and his personal journey
In this episode of the podcast I had the honour of speaking with Dr Asad Khan.
Dr Khan talks openly about his own experience of Long Covid, the treatment he has had, the gaslighting experienced, subsequent diagnosis of MCAS, POTS and pericarditis.
Dr Khan explains the treatments he has had to date and how he has had to travel to access these treatments as we are not undertaking these in the UK. This has been undertaken privately and Dr Khan acknowledges how not everyone can afford or are able to access treatments abroad.
We discuss how this impacts life, how people have lost their lives and taken their lives due to the disabling impact of Long Covid.
Dr Khan and I talk about vaccine injury, organ damage and the possibilities that appropriate research and treatment may offer.
Dr Khan offers hope for the future and advises people to try to understand and read up on their symptoms, implementing some pacing, vagal nerve stimulation, protecting the gut microbiome and other symptom management.
I hope you enjoy this episode and
Support Links:
https://findahelpline.com
https://www.papyrus-uk.org
https://www.samaritans.org - Tel 116 123
Dr Asad Khan Links:
https://linktr.ee/doctorasadkhan?utm_source=linktree_profile_share&Itsid=37c3e9a1-c15d-40d5-ab31-a9ef41b92ca4
Instagram:
https://www.instagram.com/doctorasadkhan
Twitter:
https://twitter.com/doctorasadkhan
My Links:
Long Covid clinic -Dr Binita Kane & Julie Taylor; Email: info@thelongcovidclinic.co.uk for more information
Episode sponsor; Turnto - This is a brilliant app, a one stop shop to support anyone living with, caring for or supporting and additionally professionals working with people living with Long Covid and or MECFS - please mention The Long Covid podcast n the "how did you hear about us" section, thank you
https://turnto.ai/download?utm_source=link&utm_medium=share&utm_campaign=livinglongcovidpodcast
Linktree:
https://linktr.ee/joulest
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https://twitter.com/julieTa58407536
Facebook page:
https://www.facebook.com/livingwithlongcovid/
Instagram:
https://www.instagram.com/julie_livingwithlongcovid
Planners:
https://amzn.eu/d/9v9MP4v
Return to work planner:
https://amzn.eu/d/1QVK8zn
Well being planner:
https://amzn.eu/d/a1Safxc