Living with Long covid
This podcast aims to raise awareness of long covid, provide a platform of support, education and the lived experience.My name is Julie, I am a registered nurse in the UK. I became unwell with Covid in May 2020 while working on the front line, during the first wave of the pandemic. Subsequently I live with long covid and POTS ( postural orthostatic tachycardia syndrome). I would like to share my journey and lived experience, the symptoms and how each impacts daily life. I aim to not only consider the physical issues but also the impact this has had mentally and emotionally. It is reported over 2 million people in the UK and an estimated 65 million worldwide, live with long covid. This is huge, and affects every area of a persons life, their family, friendships and work life. Join me and some great guests and let’s Learn, advocate and continue this journey together.
Living with Long covid
Dr Wes Ely- Long Covid validation
On this episode of the podcast I am honoured to have a guest, Dr Wes Ely MD, MPH.
Dr Ely is an internist, pulmonologist and critical care physician in Nashville.
Dr Ely advocates for patients with Long Covid, he is the author of a book, Every deep drawn breath; 100% of the proceeds from this book Dr Ely donates to support ICU and covid survivors and their families rebuild their lives.
In this episode Dr Ely and I discuss holistic patient care, gaslighting and validating those with Long Covid as this is a medical condition/disability and not psychosomatic.
Dr Ely explains how the brain is effected and how damage/injury is caused, we discuss the difference between brain injury and brain fog.
Dr Ely has produced some impacting Tik Tok videos describing the physiology and impact of Long Covid, while appealing to other medical professionals to listen to and treat their patients effectively. Dr Ely social media contacts can be found below.
I hope you enjoy this episode, as always take care.
Links from todays podcast:
https://www.amazon.co.uk - Every deep drawn breath- book available here and other book stores
https://www.icudelirium.org
https://www.tiktok.com@weselymd
https://twitter.com@cibscenter
https://twitter.com@weselymd
My Links:
Long Covid clinic -Dr Binita Kane & Julie Taylor; Email: info@thelongcovidclinic.co.uk for more information
Episode sponsor; Turnto - This is a brilliant app, a one stop shop to support anyone living with, caring for or supporting and additionally professionals working with people living with Long Covid and or MECFS - please mention The Long Covid podcast n the "how did you hear about us" section, thank you
https://turnto.ai/download?utm_source=link&utm_medium=share&utm_campaign=livinglongcovidpodcast
Linktree:
https://linktr.ee/joulest
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https://twitter.com/julieTa58407536
Facebook page:
https://www.facebook.com/livingwithlongcovid/
Instagram:
https://www.instagram.com/julie_livingwithlongcovid
Planners:
https://amzn.eu/d/9v9MP4v
Return to work planner:
https://amzn.eu/d/1QVK8zn
Well being planner:
https://amzn.eu/d/a1Safxc